There has been a decades-long movement to increase what gets called lived experience, service user, or patient involvement in the design and delivery of mental health services, programmes, projects, and research. There are now many groups and activists working in a range of ways and contexts to bring much-needed lived experience perspectives to spaces dominated by those positioned as “professionals”. A big pull, I think, for those who want to “do” involvement and co-production, is the hope that things may change for the better for other people who experience mental ill-health, distress and trauma.
Unpaid carers provide significant levels of support to family or friends – equivalent to 4 million paid care workers. Carers often need support with their own health and wellbeing, but they are not always able to access this.
Picker and The King’s Fund have worked with NHS England and NHS Improvement on how ICSs can listen to and learn from people and communities. This practical guide is for partners working in these systems, with ideas on how they might go about this.